I am reading a book called 'Dancing With Max' by Emily Colson. Wow...I just figured out how to post a link in text without just putting the link in here. I learn new stuff daily! Anyway, I love the book. It's about a woman & her son that has Autism. She was the keynote speaker at the Love Finds A Way Conference at Pear Orchard Presbyterian Church this past weekend. Anyway, I just read this in the chapter called, 'A Hole In The Wall.' "Autism, for all it's challenges, wasn't my biggest struggle. It was the fighting that was destroying me, the unending battle to get the right education, to find the right specialists, to find the right treatments, to seek out specialists, to pay for all this." I'm not sure if doing all of this extra work she is talking about is making me stronger or breaking me down in addition to all the problems Jadyn has. I can Google, make phone calls, get her to doctors, go to conferences, etc. with no problem it seems like. The Love Finds A Way Conference actually helped me by a pediatric neurologist telling me to call her pediatrician & give her a referral for Jadyn to see him in his clinic. MIRACLE!!! She didn't wanna give me a referral until she did her brain CT, etc. I got to call her yesterday & say, "I met this man, he said he wants to see her & to make her an appointment." I think I'm very strong & good at getting her the help she needs. That's my strong point. I think I would be awesome at helping others do this. I think it's Jadyn crying for no reason & her not doing what she is supposed to do & hearing what doctors & therapists say that is killing me.
I just wanted to share what that book said. I thought it may apply to some people. God just put it on me to share it with the probably very few people that do read this blog. I think it helps me by putting my feelings on paper. Maybe instead of a public blog I should just keep a journal. I only have 3 followers on here. Maybe I need to make the blog about my feelings, my other child, & Jadyn's Journey with her health. Any thoughts on that?
My son is 11 and has spastic quad. CP. It is pretty sever physically, he is in a power wheelchair, vision issues, GI issues, ect. but intellectually he is great. Despite his vision problems he has learned to read and tests out low average in most areas but very high (exceptional) with his memory and understanding. The best thing you can do for you daughter is be a strong advocate for her and thats just what you are doing. Dont let anyone say what she will or will not do in life because that will only hold her back. She is so blessed to have you just like you are blessed to have her! Some days can be hard with surgery's and set backs but you sure are one strong mama!
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